Bill > J00543

This resolution memorializes Governor Kathy Hochul to officially proclaim March 15, 2025, as Stiff Person Syndrome (SPS) Awareness Day in New York State, aiming to increase public understanding of this rare neurological disorder. The resolution provides detailed information about SPS, explaining that it is a condition causing involuntary muscle contractions and spasms that can affect individuals' ability to control their body movements, with symptoms that can be triggered by stress, sudden movements, or temperature changes. The document highlights that SPS is a rare disorder affecting approximately one to two individuals per million, with no known cure, and potentially affects people of all ages and backgrounds. The resolution emphasizes the importance of raising awareness about the syndrome, noting that researchers believe it may be related to antibodies blocking an enzyme involved in neurotransmitter production, and that managing the condition requires working with specialists and using various therapies and medications. By requesting the governor's proclamation, the legislative body seeks to draw attention to this serious health issue and potentially encourage further research and understanding of Stiff Person Syndrome.

Budget and Finance

https://www.nysenate.gov/legislation/bills/2025/J543