Bill > HCR4

This resolution proclaims May 2025 as Myositis Awareness Month in Alaska, highlighting the challenges faced by individuals with myositis, a group of rare, chronic autoimmune muscle-wasting diseases. The resolution emphasizes that nearly one in 10 Americans has a rare disease, and myositis can cause debilitating symptoms such as muscle inflammation, pain, fatigue, and swallowing difficulties, potentially leading to serious lung complications. The resolution notes that more research is needed to understand the causes and treatments for various myositis types, including dermatomyositis, juvenile myositis, and inclusion body myositis. It points out that myositis is difficult to diagnose, often resulting in delayed treatment and challenges in finding specialized healthcare providers. The resolution acknowledges that individuals with myositis experience reduced quality of life and shortened life expectancy, with no current cure available. The Alaska State Legislature encourages residents to learn about myositis, support affected individuals and families, and recognizes The Myositis Association's efforts to raise awareness and support the myositis community through their nationwide observance in May 2025.

Health and Social Services

https://www.akleg.gov/basis/Bill/Detail/34?Root=HCR4