Bill > HRes253

This resolution expresses support for designating May 15, 2025, as "Prader-Willi Syndrome Awareness Day" and seeks to raise awareness about Prader-Willi Syndrome (PWS), a rare genetic disorder affecting approximately 1 in 15,000 births. The resolution highlights that PWS is a complex condition causing life-threatening obesity, characterized by an extreme and insatiable appetite, cognitive and learning disabilities, and significant health challenges. It notes that PWS affects males and females equally across all races and ethnicities, with an estimated 10,000 to 20,000 individuals living with the syndrome in the United States. The House of Representatives supports efforts to improve public understanding, encourage early diagnosis, advance research, develop new treatments, and recognize the critical work of advocates, families, and organizations like the Prader-Willi Syndrome Association in supporting individuals and seeking potential treatments. The resolution emphasizes the importance of continued research to better understand the disorder, potentially improve treatments, and ultimately work towards finding a cure, while also acknowledging that there is currently no known cure for PWS.

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https://www.congress.gov/bill/119th-congress/house-resolution/253/all-info