Bill > H3961

This bill requires the Massachusetts Department of Public Health to develop and distribute comprehensive informational resources about Sudden Unexpected Death in Epilepsy (SUDEP), a serious and potentially fatal condition associated with epilepsy. Specifically, the department must create educational materials that include evidence-based information about SUDEP and epilepsy-related mortality risk factors, contact information for support organizations, and guidance on mitigating these risks. The resources must be easily accessible on the department's website for patients, families, and healthcare providers. Additionally, within one year of the bill's passage, the department must submit a report to legislative clerks detailing the information gathered, efforts to distribute the resources, their impact on patient outcomes, and any challenges encountered in dissemination. The bill also mandates a statewide public awareness campaign about SUDEP and related epilepsy mortalities, aiming to educate the public about this critical health issue and potentially reduce associated risks.

Health and Social Services

https://malegislature.gov/Bills/194/H3961