Bill > H633

This bill appropriates funds to the North Carolina Department of Health and Human Services' Division of Public Health to expand programs and services for individuals with sickle cell disease, addressing the growing population of approximately 7,000 state residents with this condition. The bill allocates a total of $2.308 million in recurring funds and $1.243 million in nonrecurring funds over two fiscal years (2025-2027), distributed across four key areas: (1) providing funding to six comprehensive sickle cell medical centers (including Atrium Health, Duke University, and others) to support multifaceted needs of patients, (2) creating a Transition Coordinator position at each medical center to help patients move from pediatric to adult care, (3) offering grants to community-based nonprofit organizations that provide services to sickle cell patients, with a focus on counties lacking such services, and (4) supporting the North Carolina Sickle Cell Syndrome Program by creating additional staff positions, purchasing office equipment, and developing an evidence-based toolkit to improve emergency department care for sickle cell patients. The bill aims to enhance medical care, support services, and transition assistance for individuals with sickle cell disease across the state, with funding becoming effective on July 1, 2025.

Budget and Finance

https://www.ncleg.gov/BillLookUp/2025/H633