Bill > A07559

This bill establishes the "Genetic Privacy and Protection Act," which introduces comprehensive regulations for the handling of consumer genetic data during financial challenges. The legislation defines genetic data as any information about an individual's DNA, inherited characteristics, or genetic predispositions, and applies to companies that collect or process such data. When a genetic data holder experiences financial distress—which includes merger announcements, bankruptcy filings, or signs of financial instability—they are required to permanently delete all consumer genetic data within 30 days and notify affected consumers within 15 days. The bill prohibits the sale, transfer, or continued use of genetic data during bankruptcy or financial restructuring, and mandates that any third party acquiring assets can only use consumer genetic data with explicit, renewed consent from the original consumer. Additionally, genetic data holders must submit annual financial stability reports to state authorities, and if financial instability is detected, they must immediately stop collecting new genetic data. The attorney general is empowered to enforce these provisions, with potential civil penalties of up to $50,000 per affected consumer. The primary goal of this legislation is to protect individuals' sensitive genetic information from being treated as a commercial asset during corporate financial challenges.

Business and Industry

https://www.nysenate.gov/legislation/bills/2025/A7559