Bill > SJR16

This resolution urges support for the Ensuring Lasting Smiles Act, a proposed federal legislation designed to help individuals born with congenital anomalies (birth defects) access comprehensive medical care. The resolution highlights the challenges faced by people with such conditions, using the story of Emily Brubaker, a young woman born with hypohidrotic ectodermal dysplasia, as an example of the significant medical expenses families can incur. The act would require private health insurance plans to cover all medically necessary treatments for congenital anomalies, including surgeries, therapies, and associated care, without imposing lifetime or annual coverage limits. By passing this legislation, the resolution aims to prevent families from experiencing financial hardship and ensure that individuals with congenital anomalies can receive continuous, affordable healthcare throughout their lives. The Alaska State Legislature is calling on its congressional delegation to support the act and continue advocating for equitable healthcare access for all individuals.

Health and Social Services

https://www.akleg.gov/basis/Bill/Detail/34?Root=SJR16