Bill > J00742

This resolution memorializes Governor Kathy Hochul to officially proclaim May 2025 as Neurofibromatosis (NF) Month in New York State, recognizing a serious genetic disorder that affects more than 130,000 Americans. The resolution highlights the work of Neurofibromatosis Northeast, a nonprofit organization that has spent over 30 years promoting research, creating awareness, and supporting those affected by NF. It notes recent medical advancements, including the FDA's 2019 approval of Koselugo for NF1 treatment and ongoing clinical trials exploring combination, gene, and bacterial therapies. The resolution emphasizes the importance of increasing public awareness about NF, supporting research efforts, and helping patients and families by making the condition more widely understood. By requesting the governor's official proclamation, the legislative body aims to draw attention to this serious health condition and support continued research and understanding of neurofibromatosis.

Budget and Finance

https://www.nysenate.gov/legislation/bills/2025/J742