Bill > HR182

This resolution recognizes June 2025 as "Scleroderma Awareness Month" and June 29, 2025, as "World Scleroderma Day" in Pennsylvania, highlighting the importance of raising awareness about this rare autoimmune disease. The resolution provides context about scleroderma, explaining that it is a condition that causes skin hardening and tightening, potentially affecting blood vessels, internal organs, and primarily impacting women, with approximately 300,000 individuals in the United States affected. The document notes that scleroderma typically occurs between ages 25 and 55, with African Americans being more likely to be diagnosed and experience more severe symptoms. While there is no cure, treatments include medications to manage symptoms, physical and occupational therapies, and potentially stem cell or organ transplants. The resolution emphasizes the ongoing research by Pennsylvania institutions like Thomas Jefferson University and the University of Pennsylvania, and underscores the significance of increasing public understanding of this rare disease to support affected individuals, promote research, and improve treatment options.

Health and Social Services

https://www.legis.state.pa.us/cfdocs/billinfo/bill_history.cfm?syear=2025&sind=0&body=H&type=R&bn=182