BillTrack50 logo
Free Signup Login
Bill

Bill > J00809

NY J00809

NY J00809
Memorializing Governor Kathy Hochul to proclaim May 15, 2025, as Prader-Willi Syndrome Awareness Day in the State of New York

summary

Introduced
04/15/2025
In Committee
04/29/2025
Crossed Over
Passed
04/29/2025
Dead
Signed/Enacted/Adopted
04/29/2025

Introduced Session

2025-2026 General Assembly

Bill Summary

Memorializing Governor Kathy Hochul to proclaim May 15, 2025, as Prader-Willi Syndrome Awareness Day in the State of New York

AI Summary

This resolution memorializes Governor Kathy Hochul to proclaim May 15, 2025, as Prader-Willi Syndrome Awareness Day in New York State, highlighting the significant challenges of this rare genetic disorder that affects approximately one in 15,000 births. The resolution explains that Prader-Willi Syndrome (PWS) is a complex condition causing an insatiable appetite, potential morbid obesity, cognitive and behavioral difficulties, and requiring constant lifelong supervision. By seeking this proclamation, the resolution aims to increase public awareness, support research efforts, and recognize the challenges faced by individuals and families affected by PWS. The document notes that New York State has already taken steps to support PWS patients by adding the syndrome to the definition of "developmental disability" in 2017, and it acknowledges local organizations like the Prader-Willi Alliance of New York and the national Prader-Willi Syndrome Association for their advocacy work. The resolution also celebrates recent medical advancements like human growth hormone treatments and calls for continued research to potentially develop more effective treatments and ultimately find a cure for the syndrome.

Committee Categories

Budget and Finance

Sponsors (62)

Jake Ashby (R)*,  Joe Addabbo (D),  Jamaal Bailey (D),  April Baskin (D),  George Borrello (R),  Jabari Brisport (D),  Samra Brouk (D),  Siela Bynoe (D),  Patricia Canzoneri-Fitzpatrick (R),  Stephen Chan (R),  Cordell Cleare (D),  Leroy Comrie (D),  Jeremy Cooney (D),  Patricia Fahy (D),  Nathalia Ferna´ndez (D),  Patrick Gallivan (R),  Michael Gianaris (D),  Kristen Gonzalez (D),  Andrew Gounardes (D),  Joe Griffo (R),  Pete Harckham (D),  Pam Helming (R),  Michelle Hinchey (D),  Brad Hoylman (D),  Robert Jackson (D),  Brian Kavanagh (D),  Liz Krueger (D),  Andrew Lanza (R),  John Liu (D),  Monica Martinez (D),  Jack Martins (R),  Mario Mattera (R),  Rachel May (D),  Shelley Mayer (D),  Dean Murray (R),  Zellnor Myrie (D),  Tom O'Mara (R),  Peter Oberacker (R),  Rob Ortt (R),  Tony Palumbo (R),  Kevin Parker (D),  Roxanne Persaud (D),  Jessica Ramos (D),  Steve Rhoads (R),  Gustavo Rivera (D),  Rob Rolison (R),  Christopher Ryan (D),  Sean Ryan (D),  Julia Salazar (D),  James Sanders (D),  Jessica Scarcella-Spanton (D),  Luis Sepúlveda (D),  Jose Serrano (D),  James Skoufis (D),  Toby Stavisky (D),  Dan Stec (R),  Andrea Stewart-Cousins (D),  Jim Tedisco (R),  Mark Walczyk (R),  Lea Webb (D),  Bill Weber (R),  Alexis Weik (R), 

Last Action

ADOPTED (on 04/29/2025)

bill text

bill summary

Loading...

bill summary

Loading...
Loading...