Bill > SCR52

This concurrent resolution recognizes February 15, 2025, as Angelman Syndrome Awareness Day in Delaware, drawing attention to a rare neuro-genetic disorder that affects approximately 500,000 individuals worldwide. The resolution provides detailed context about Angelman syndrome, explaining that it is caused by a genetic mutation on the 15th chromosome affecting the UBE3A gene, which impacts speech and movement development. Individuals with the syndrome typically experience developmental delays starting between 6 and 12 months, along with challenges such as speech difficulties, balance problems, mental disabilities, and potential seizures. The resolution highlights that the syndrome is rare, often occurring without a family history, and currently has no cure, though treatment focuses on managing medical and developmental issues. By designating a specific awareness day, the Delaware General Assembly aims to promote understanding of Angelman syndrome, encourage effective screening and diagnosis, and support ongoing research efforts to potentially develop future treatments for this complex genetic condition.

https://legis.delaware.gov/BillDetail?LegislationId=142109