Bill > H6294

This resolution proclaims May 2025 as "Myositis Awareness Month" in Rhode Island, highlighting the significance of a rare group of chronic autoimmune muscle diseases that affect approximately one in ten Americans. The resolution acknowledges that myositis, which includes several specific conditions like dermatomyositis and polymyositis, is challenging to diagnose and currently lacks a cure, and that patients experience reduced quality of life with potentially shortened life expectancy. The House of Representatives encourages Rhode Island residents to learn more about myositis and its symptoms, and to support affected families, recognizing that health disparities particularly impact women and people of color. The resolution also acknowledges the Myositis Association (TMA) as the leading international patient advocacy organization working to raise awareness, provide patient services, and advance research. Additionally, the resolution directs the Secretary of State to send a certified copy of the resolution to the Executive Director of the Myositis Association and a specified individual, formally recognizing the importance of bringing attention to this rare disease group.

https://status.rilegislature.gov/