summary
Introduced
05/02/2025
05/02/2025
In Committee
06/25/2025
06/25/2025
Crossed Over
06/25/2025
06/25/2025
Passed
Dead
Introduced Session
2025-2026 Regular Session
Bill Summary
Amending the act of July 7, 2017 (P.L.285, No.14), entitled "An act establishing the Rare Disease Advisory Council and providing for its powers and duties; and providing for duties of the Department of Health, the Insurance Department, the Department of Human Services and the Department of Education," further providing for expiration.
AI Summary
This bill proposes to extend the expiration date of the Rare Disease Advisory Council Act from June 30, 2025, to June 30, 2028. The Rare Disease Advisory Council, established by the original act in 2017, is a body dedicated to addressing issues related to rare diseases in Pennsylvania. By pushing back the expiration date by three years, the bill ensures that the council will continue to operate and provide guidance on rare disease issues for an additional period. The amendment is straightforward, simply changing the year in the original legislation's expiration clause from 2025 to 2028, with the bill taking effect immediately upon passage. This extension will allow the council to continue its work in supporting and advocating for individuals and families affected by rare diseases in the Commonwealth.
Committee Categories
Budget and Finance, Health and Social Services
Sponsors (15)
Judy Ward (R)*,
Lisa Baker (R),
Michele Brooks (R),
Maria Collett (D),
Carolyn Comitta (D),
Jay Costa (D),
Art Haywood (D),
Scott Hutchinson (R),
Patty Kim (D),
Wayne Langerholc (R),
Dan Laughlin (R),
Nick Miller (D),
Devlin Robinson (R),
Pat Stefano (R),
Elder Vogel (R),
Last Action
Laid on the table (Pursuant to House Rule 71) (on 11/17/2025)
bill text
bill summary
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bill summary
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bill summary
| Document Type | Source Location |
|---|---|
| State Bill Page | https://www.legis.state.pa.us/cfdocs/billinfo/bill_history.cfm?syear=2025&sind=0&body=S&type=B&bn=715 |
| Senate Fiscal Note PN 0727 | https://www.legis.state.pa.us/WU01/LI/BI/SFN/2025/0/SB0715P0727.pdf |
| BillText | https://www.legis.state.pa.us/cfdocs/legis/PN/Public/btCheck.cfm?txtType=PDF&sessYr=2025&sessInd=0&billBody=S&billTyp=B&billNbr=0715&pn=0727 |
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