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NY J00945
NY J00945Memorializing Governor Kathy Hochul to proclaim July 2025 as MECP2 Duplication Syndrome Awareness Month in the State of New York
summary
Introduced
05/06/2025
05/06/2025
In Committee
05/13/2025
05/13/2025
Crossed Over
Passed
05/13/2025
05/13/2025
Dead
Signed/Enacted/Adopted
05/13/2025
05/13/2025
Introduced Session
2025-2026 General Assembly
Bill Summary
Memorializing Governor Kathy Hochul to proclaim July 2025 as MECP2 Duplication Syndrome Awareness Month in the State of New York
AI Summary
This resolution seeks to memorialize Governor Kathy Hochul to proclaim July 2025 as MECP2 Duplication Syndrome Awareness Month in New York State, highlighting the complex genetic disorder that affects individuals on a neurological and systemic level. The resolution provides context about MECP2 duplication syndrome, explaining that it is caused by a duplication of DNA on the Xq28 region of chromosomes, was not formally recognized until 2005, and can cause multiple health challenges including severe gastrointestinal symptoms, respiratory infections, treatment-resistant seizures, and potential autism-like features. The resolution also notes the significant emotional toll on caregivers and emphasizes the importance of proper stimulation and social interactions for patients, while also highlighting recent scientific research that offers hope for potential future treatments, such as studies showing symptom reversal in mice and ongoing clinical readiness and natural history studies. By memorializing this awareness month, the resolution aims to increase public understanding of this rare genetic condition and support ongoing research efforts.
Committee Categories
Budget and Finance
Sponsors (63)
Dean Murray (R)*,
Joe Addabbo (D),
Jake Ashby (R),
Jamaal Bailey (D),
April Baskin (D),
George Borrello (R),
Jabari Brisport (D),
Samra Brouk (D),
Siela Bynoe (D),
Patricia Canzoneri-Fitzpatrick (R),
Stephen Chan (R),
Cordell Cleare (D),
Leroy Comrie (D),
Jeremy Cooney (D),
Patricia Fahy (D),
Nathalia Ferna´ndez (D),
Patrick Gallivan (R),
Michael Gianaris (D),
Kristen Gonzalez (D),
Andrew Gounardes (D),
Joe Griffo (R),
Pete Harckham (D),
Pam Helming (R),
Michelle Hinchey (D),
Brad Hoylman (D),
Robert Jackson (D),
Brian Kavanagh (D),
Liz Krueger (D),
Andrew Lanza (R),
John Liu (D),
Monica Martinez (D),
Jack Martins (R),
Mario Mattera (R),
Rachel May (D),
Shelley Mayer (D),
Zellnor Myrie (D),
Tom O'Mara (R),
Peter Oberacker (R),
Rob Ortt (R),
Tony Palumbo (R),
Kevin Parker (D),
Roxanne Persaud (D),
Jessica Ramos (D),
Steve Rhoads (R),
Gustavo Rivera (D),
Rob Rolison (R),
Christopher Ryan (D),
Sean Ryan (D),
Julia Salazar (D),
James Sanders (D),
Jessica Scarcella-Spanton (D),
Luis Sepúlveda (D),
Jose Serrano (D),
James Skoufis (D),
Toby Stavisky (D),
Dan Stec (R),
Andrea Stewart-Cousins (D),
Sam Sutton (D),
Jim Tedisco (R),
Mark Walczyk (R),
Lea Webb (D),
Bill Weber (R),
Alexis Weik (R),
Last Action
ADOPTED (on 05/13/2025)
Official Document
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bill summary
| Document Type | Source Location | Created |
|---|---|---|
| State Bill Page | https://www.nysenate.gov/legislation/bills/2025/J945 | 05/06/2025 |
| BillText | https://assembly.state.ny.us/leg/?default_fld=&bn=J00945&term=2025&Summary=Y&Actions=Y&Text=Y&Committee%26nbspVotes=Y&Floor%26nbspVotes=Y#J00945 | 05/06/2025 |
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