Bill > S1609

This bill, named "Ellie's Law," aims to support comprehensive research on unruptured intracranial aneurysms (brain aneurysms) at the National Institute of Neurological Disorders and Stroke (NINDS). The legislation highlights the significant health impact of brain aneurysms, noting that an estimated 6.8 million Americans have an unruptured brain aneurysm, with 30,000 experiencing a rupture annually and a 50% fatality rate. The bill is named after five individuals who died from brain aneurysms, including Ellie Helton, a 14-year-old who passed away in 2014, and seeks to raise awareness about the condition's prevalence and devastating effects. Currently, the federal government spends only about $2.94 per year on brain aneurysm research for each affected person, which the bill aims to address by authorizing $10 million in funding annually from fiscal years 2026 through 2030. The research will focus on studying a diverse patient population across different ages, sexes, and races, with the goal of better understanding and potentially improving treatment for brain aneurysms. The bill explicitly states that this funding is meant to supplement, not replace, existing research funding, emphasizing its commitment to expanding scientific knowledge about this serious medical condition.

Health and Social Services

https://www.congress.gov/bill/119th-congress/senate-bill/1609/all-info