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Bill > SJR164


NJ SJR164

NJ SJR164
Designates March 17 of each year as "Profound Autism Day."


summary

Introduced
05/19/2025
In Committee
05/19/2025
Crossed Over
Passed
Dead
01/12/2026

Introduced Session

2024-2025 Regular Session

Bill Summary

This joint resolution designates March 17 of each year as "Profound Autism Day." The definition of autism has evolved over time, creating an increasingly heterogeneous spectrum. While the entire spectrum deserves recognition and support, profound autism is a term intended to provide clarification about the autistic people who require care from an adult caregiver throughout their lives, 24 hours a day and seven days a week. People with profound autism can have a severe intellectual disability or have minimal or no language. They are frequently excluded from research and support programs because of their unique needs. The federal Centers for Disease Control (CDC) released its first prevalence study on profound autism in April 2023. The research concluded that the percentage of 8-year-old children with profound autism among those with autism in the United States was 26.7 percent. The CDC study also found that, compared with children with non-profound autism, children with profound autism were more likely to be female, from racial and ethnic minority groups, of low socioeconomic status, born preterm or with low birth weight, and have self-injurious behaviors, seizure disorders, and lower adaptive scores.

AI Summary

This joint resolution designates March 17 of each year as "Profound Autism Day" in New Jersey, aiming to raise awareness about a specific subset of individuals on the autism spectrum who require intensive, round-the-clock care. The resolution recognizes that people with profound autism often have severe intellectual disabilities, minimal or no language skills, and are frequently excluded from research and support programs. Based on a 2023 CDC study, 26.7 percent of children with autism have profound autism, and these individuals are more likely to be female, from racial and ethnic minority groups, of low socioeconomic status, born preterm, and experience challenges such as self-injurious behaviors and seizure disorders. The resolution calls on the Governor to issue an annual proclamation recognizing the day and seeks to highlight the experiences, unique challenges, and critical needs of people with profound autism and their caregivers, emphasizing the importance of inclusion and support for this vulnerable population.

Committee Categories

Health and Social Services

Sponsors (4)

Last Action

Introduced in the Senate, Referred to Senate Health, Human Services and Senior Citizens Committee (on 05/19/2025)

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