Bill > SR111

This resolution designates May 2025 as "Amyotrophic Lateral Sclerosis Awareness Month" in Pennsylvania, highlighting the critical characteristics and impacts of ALS (Amyotrophic Lateral Sclerosis), also known as Lou Gehrig's disease. The resolution provides detailed context about ALS, explaining that it is a fatal neurodegenerative disease primarily affecting adults between 40 and 70 years old, with an average diagnosis age of 55, and occurs 20% more frequently in men. The resolution describes ALS as a progressive condition that initially causes muscle weakness, eventually leading to difficulty swallowing, talking, and breathing, and ultimately resulting in the patient becoming a functional quadriplegic, while notably preserving the patient's mental capacity. The document emphasizes that approximately 5,000 new patients are diagnosed annually, with patients typically surviving only two to five years after diagnosis, and currently having no known cause, prevention, or cure. By designating this awareness month, the resolution aims to increase public understanding of ALS, acknowledge the significant challenges faced by patients and their families, and recognize ongoing research efforts to address this devastating disease.

Government Affairs

https://www.legis.state.pa.us/cfdocs/billinfo/bill_history.cfm?syear=2025&sind=0&body=S&type=R&bn=111