Bill > SR0048

This resolution seeks to designate May 2025 as Ehlers-Danlos Syndrome (EDS) Awareness Month, highlighting the critical need to raise public understanding about this complex inherited condition that affects connective tissues. EDS is a genetic disorder caused by defects in collagen, impacting the body's structural support systems, with 13 known types that can cause symptoms including joint hypermobility, easy bruising, joint pain, and potential complications with internal organs. The resolution notes that EDS affects at least 1 in 5,000 people worldwide and is likely underdiagnosed, with approximately 80% of patients also experiencing postural orthostatic tachycardia syndrome (POTS), a condition characterized by rapid heart rate changes and associated symptoms like dizziness, fatigue, and cognitive difficulties. Recognizing that currently there is no treatment or cure for EDS, the resolution aims to honor those affected by the syndrome, encourage scientific research and funding, and promote awareness to help improve early diagnosis and potential medical management, ultimately seeking to enhance the quality of life for individuals living with this challenging condition.

https://legislature.mi.gov/Bills/Bill?ObjectName=2025-SR-0048