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NJ AJR227
NJ AJR227Designates May of each year as "Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders Awareness Month."
summary
Introduced
05/22/2025
05/22/2025
In Committee
05/22/2025
05/22/2025
Crossed Over
Passed
Dead
01/12/2026
01/12/2026
Introduced Session
2024-2025 Regular Session
Bill Summary
This resolution designates May of each year as "Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders Awareness Month." Ehlers-Danlos Syndrome (EDS) represents multiple genetic disorders involving mutations in connective tissue that are characterized by looseness, instability, and dislocation of the joints and fragile skin that easily bruises and scars. There is currently no treatment for EDS and no known cure. Treatment for EDS focuses on managing symptoms and preventing complications through approaches like physical therapy, to improve joint stability, pain management strategies, and avoiding high-risk activities, and EDS support groups also help connect those managing life with the disease to available treatment services. Hypermobility spectrum disorders (HSD) are connective tissue disorders that cause joint hypermobility, instability, injury, and pain. Problems such as fatigue, headaches, gastrointestinal problems, and autonomic dysfunction are often seen as part of HSD. Both EDS and HSD involve joint hypermobility, chronic pain, fatigue, and sometimes autonomic or gastrointestinal symptoms. Ongoing medical research and growing awareness offer hope for improved treatments and, ultimately, a cure for EDS and HSD. In New Jersey, the Robert Wood Johnson University Hospital offers specialized care for individuals seeking diagnosis or management of EDS and HSD. May is recognized as Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) Awareness Month nationally, dedicated to raising awareness and support for those affected by these conditions. Officially designating May as "Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders Awareness Month" in New Jersey would help increase public understanding of these heritable connective tissue disorders and promote continued research aimed at improving diagnosis and treatment.
AI Summary
This joint resolution designates May of each year as "Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders Awareness Month" in New Jersey, with the aim of increasing public understanding of these complex genetic conditions. The resolution highlights that Ehlers-Danlos Syndrome (EDS) is a group of genetic disorders affecting connective tissue, characterized by joint instability, fragile skin, and chronic pain, with an estimated prevalence of 1 in 5,000 people worldwide. It also explains that Hypermobility Spectrum Disorders (HSD) are related conditions causing joint hypermobility, pain, and potential additional symptoms like fatigue and gastrointestinal issues. The resolution seeks to raise awareness about the challenges faced by individuals with these conditions, emphasize the importance of early and accurate diagnosis, and encourage continued medical research. Additionally, the resolution requests that the Governor issue an annual proclamation recognizing the awareness month and invites public officials and citizens to participate in appropriate activities and programs to support those affected by EDS and HSD.
Committee Categories
Health and Social Services
Sponsors (1)
Last Action
Introduced, Referred to Assembly Health Committee (on 05/22/2025)
Official Document
bill text
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bill summary
| Document Type | Source Location |
|---|---|
| State Bill Page | https://www.njleg.state.nj.us/bill-search/2024/AJR227 |
| BillText | https://pub.njleg.gov/Bills/2024/AJR/227_I1.HTM |
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