Bill > K00525

This resolution memorializes Governor Kathy Hochul to officially proclaim May 2025 as Huntington's Disease Awareness Month in New York State, highlighting the critical need to raise public awareness about this serious genetic disorder. The resolution describes Huntington's disease as a devastating, hereditary brain disorder that progressively impairs an individual's ability to walk, think, talk, and reason, ultimately rendering them completely dependent on caregivers. It notes that over a quarter of a million Americans are either diagnosed with or at risk of inheriting the disease, and emphasizes the profound emotional, social, and economic impact on affected families. The resolution also recognizes the Albany Chapter of the Huntington's Disease Society of America, which was formed in 2011 to raise awareness, fund research, and support education about the condition. By requesting the governor's official proclamation, the resolution aims to increase local, state, and national efforts to support those with Huntington's disease, their families, and ongoing research into potential treatments or a cure.

https://www.nysenate.gov/legislation/bills/2025/K525