Bill > K00521

This resolution seeks to memorialize Governor Kathy Hochul to officially proclaim May 3, 2025, as Juvenile Idiopathic Arthritis (JIA) Awareness Day in New York State, highlighting the significant challenges faced by children with this chronic condition. The resolution emphasizes that JIA affects one in 1,000 young children in the United States, and seeks to raise awareness about the disorder's impact, including the limited number of pediatric rheumatologists (less than 350 nationwide), the high cost of medications, and potential barriers to treatment. By calling attention to JIA, the resolution aims to encourage greater public understanding, promote early detection and intervention, and support improved access to specialized healthcare for affected children. Additionally, the resolution calls for transmission of the document to the Governor, the State Department of Health, and members of the affected community, demonstrating a commitment to supporting children with this challenging medical condition and advocating for their comprehensive care and support.

https://www.nysenate.gov/legislation/bills/2025/K521