Bill > HR0350

This resolution honors Ethan Tkalec, a remarkable individual who has demonstrated extraordinary courage and resilience while living with Giant Axonal Neuropathy (GAN), an extremely rare neurodegenerative disorder affecting only about 75 people worldwide. Diagnosed at age six, Tkalec has faced significant physical challenges that have progressively impacted his muscle function, organ function, speech, and mobility, yet he has continued to inspire others through his positive attitude, gentle nature, and infectious joy. The resolution highlights his love for music, his close relationship with his family, and his remarkable experiences, such as traveling to 42 states with his father before his condition limited his mobility. By recognizing Tkalec's life on the occasion of his upcoming birthday on May 28, 2025, the Illinois House of Representatives celebrates his strength of character, his ability to bring laughter and warmth to those around him, and his profound legacy of courage and humanity. The resolution ultimately aims to present Tkalec and his family with an official document expressing the state's admiration and esteem for his inspiring life journey.

https://www.ilga.gov/legislation/BillStatus.asp?DocNum=350&GAID=18&DocTypeID=HR&SessionID=114&GA=104