Bill > K00557

This resolution memorializes Governor Kathy Hochul to officially proclaim May 2025 as Cystic Fibrosis (CF) Awareness Month in New York State, highlighting the importance of raising public understanding about this genetic disease. The resolution provides context about CF, noting that it affects approximately 40,000 people in the United States and over 105,000 worldwide, with more than 1,600 cases in New York, and is caused by a defective gene that produces thick, sticky mucus which clogs lungs and obstructs pancreatic function. The document emphasizes the work of the Cystic Fibrosis Foundation in seeking a cure, underscores that 10 million Americans are symptomless carriers of the CF gene, and points out that the median predicted survival age for someone born with CF in 2019 is 48.4 years. The resolution also highlights the significance of early diagnosis, the existence of 21 specialized treatment centers in New York, and the critical need for innovative treatments and increased public awareness about this serious genetic condition.

https://www.nysenate.gov/legislation/bills/2025/K557