Bill > HR0370

This resolution declares May 2025 and May 2026 as Williams Syndrome Awareness Month in Illinois, drawing attention to a rare genetic disorder that affects approximately one in 10,000 births. The resolution provides context about Williams syndrome, highlighting that it impacts males and females equally across all races and ethnicities, and can cause significant medical, developmental, and behavioral challenges. Specifically, the syndrome can lead to cardiovascular problems, cognitive and learning disabilities, and behavioral difficulties like attention-deficit/hyperactivity disorder, often requiring lifelong supervision. The resolution emphasizes that there is currently no known cure, but early diagnosis can help families access treatments and support services. By designating these specific months as awareness periods, the resolution aims to increase public understanding, promote research, and potentially improve medical and social support for individuals with Williams syndrome, ultimately hoping to advance research that could lead to better treatments or even a future cure.

Government Affairs

https://www.ilga.gov/legislation/BillStatus.asp?DocNum=370&GAID=18&DocTypeID=HR&SessionID=114&GA=104