Bill > J01136

This resolution seeks to memorialize Governor Kathy Hochul to officially proclaim November 2025 as Alpha-1 Awareness Month in New York State, focusing on raising public understanding about Alpha-1 Antitrypsin Deficiency (Alpha-1), a serious genetic condition that can cause lung and liver diseases. The resolution provides detailed context about Alpha-1, explaining that it occurs when individuals have a severe lack of a critical protein called Alpha-1 Antitrypsin (AAT) that normally protects lungs from inflammation, with symptoms typically emerging between ages 20 and 50, including shortness of breath, reduced exercise capacity, and potential liver damage. The document highlights that approximately 10% of infants and 15% of adults with the condition may develop liver issues, and notes that treatments like augmentation therapy exist to help manage the disease. By requesting this proclamation, the resolution aims to increase awareness, support affected individuals, and recognize the work of support groups like the Alpha-1 Foundation Support Group Network, with specific mention of the Capital Region of New York Alpha-1 Support Group led by Richard Lovrich, ultimately seeking to promote greater understanding and activity around this serious health condition at local, state, and national levels.

Budget and Finance

https://www.nysenate.gov/legislation/bills/2025/J1136