Bill > HRes456

This resolution aims to raise awareness about Progressive Supranuclear Palsy (PSP), a rare neurodegenerative disorder affecting approximately 30,000 Americans. The resolution highlights that PSP is distinct from Parkinson's disease and is characterized by complex symptoms including cognitive impairment, balance difficulties, speech problems, personality changes, and vision issues. It emphasizes that PSP is an aggressive condition with no current disease-modifying treatments or cure, typically leading to patient dependency within 3-4 years. The resolution supports designating May 2025 as "Progressive Supranuclear Palsy Awareness Month" to draw attention to the disorder, its impact on patients and families, and the critical need for additional research, support services, and education. By passing this resolution, the House of Representatives formally endorses the awareness efforts, supports research into better treatments and potential cures, and commends the researchers, volunteers, organizations, and individuals working to improve the lives of those affected by PSP.

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https://www.congress.gov/bill/119th-congress/house-resolution/456/all-info