Bill > K00629

This resolution memorializes Governor Kathy Hochul to proclaim June 2025 as Scleroderma Awareness Month in New York, highlighting the importance of raising awareness about this rare disease. Scleroderma is a group of rare conditions characterized by hardening and tightening of skin and connective tissues, affecting approximately 300,000 individuals in the United States, predominantly women between ages 25 and 55, though it can also occur in children and infants. The resolution emphasizes that scleroderma can impact skin, blood vessels, internal organs, and the digestive tract, with symptoms varying by type, and while currently there is no cure, treatments can help manage symptoms and improve quality of life. The primary goals of designating this awareness month are to increase public and professional understanding of scleroderma, provide support to patients and their families, and promote research aimed at developing improved treatments and ultimately finding a cure. The resolution requests that copies be transmitted to Governor Hochul and the National Scleroderma Foundation to further support these objectives.

https://www.nysenate.gov/legislation/bills/2025/K629