Bill > A08716

This bill establishes the "Autism Data Privacy Protection Act," which creates strict privacy protections for individuals with autism. The bill prohibits state agencies, departments, commissions, political subdivisions, grantees, and contractors from collecting or disclosing personally identifiable autism-related information without the informed, written consent of the person involved. However, the bill allows for exceptions when such information is required by court orders, service delivery needs, or lawful mandates, provided that the data is limited and anonymized. If a violation occurs, the Attorney General can take legal action and impose civil penalties of up to $2,500 per violation, with each person whose information was unlawfully disclosed counting as a separate violation. The act aims to protect the privacy and personal information of individuals with autism by establishing clear guidelines for data collection, sharing, and protection, while still allowing for necessary information sharing in specific, regulated circumstances.

Government Affairs

https://www.nysenate.gov/legislation/bills/2025/A8716