Bill > K00738

This resolution memorializes Governor Kathy Hochul to proclaim June 10, 2025, as FSGS Awareness Day in New York State, highlighting the significance of focal segmental glomerulosclerosis (FSGS), a rare kidney disease that causes kidney scarring. The resolution emphasizes that FSGS affects approximately one in seven American adults, with about 50 percent of patients requiring dialysis or kidney transplant within 5-10 years of diagnosis, and disproportionately impacts minority populations, particularly African Americans. The document underscores the disease's complexity, including its potential to rapidly progress to kidney failure, high healthcare costs (estimated at $2 billion annually), and challenges in diagnosis, which can take 5-7 years. The resolution also notes positive developments, such as ongoing clinical trials and potential new treatments, and aims to raise awareness, provide support for patients and families, and promote early detection and innovative therapies for FSGS. By requesting the governor to officially recognize FSGS Awareness Day, the resolution seeks to draw attention to this serious health condition and support continued research and patient care.

https://www.nysenate.gov/legislation/bills/2025/K738