Bill > SCR86

This resolution designates May 15, 2025, as Tuberous Sclerosis Complex (TSC) Awareness Day in Delaware, highlighting the significant characteristics and impacts of this rare genetic disorder. The resolution provides detailed context about TSC, explaining that it is a complex condition affecting approximately 50,000 individuals in the United States, which causes benign tumors to develop in multiple organ systems including the brain, heart, kidneys, eyes, and lungs. The resolution notes that TSC results from irregularities in protein-encoding genes that regulate cell division, leading to various medical challenges such as epileptic seizures, neuropsychiatric conditions like autism, developmental delays, and skin lesions. While emphasizing that there is currently no medical cure, the resolution recognizes the work of organizations like the TSC Alliance in supporting research and families affected by the condition, and aims to increase public awareness and understanding of this complex genetic disorder by officially acknowledging May 15 as a day of recognition in Delaware.

https://legis.delaware.gov/BillDetail?LegislationId=142195