Bill > SR0059

This resolution recognizes June 10, 2025, as Focal Segmental Glomerulosclerosis (FSGS) Day, a rare kidney disease that significantly impacts health and healthcare systems. The resolution highlights that FSGS is a serious condition causing kidney scarring, with approximately 50% of patients requiring dialysis or kidney transplant within 5-10 years of diagnosis, and it can recur in transplanted kidneys up to 50% of the time. The resolution emphasizes the disease's disproportionate impact on Black communities, where it occurs 4-5 times more frequently than in white Americans, and notes that FSGS is often difficult to diagnose, with patients experiencing an average diagnostic delay of 5-7 years. The resolution aims to raise awareness, provide support to patients and families, and promote efforts to improve diagnosis and develop new treatments, acknowledging the significant economic burden of approximately $2 billion annually in medical costs and the ongoing clinical trials offering hope for future therapies. By designating an official awareness day, the resolution seeks to draw attention to this challenging kidney disease and support those affected by it.

https://legislature.mi.gov/Bills/Bill?ObjectName=2025-SR-0059