Bill > SR127

This resolution designates June 23, 2025, as "Dravet Syndrome Awareness Day" in Pennsylvania to raise awareness about a rare and severe form of epilepsy that begins in infancy. Dravet syndrome is a genetic condition caused primarily by a mutation in the SCN1A gene, affecting approximately 1 in 15,700 individuals and characterized by prolonged and frequent seizures, developmental delays, and a high risk of sudden unexplained death in epilepsy. The resolution highlights the immense challenges faced by affected families, who often require around-the-clock care and have limited treatment options, and emphasizes the importance of increased public awareness, continued research, and advocacy. By officially recognizing this day, the Pennsylvania Senate aims to encourage residents to learn more about the disorder, support affected individuals and families, and ultimately contribute to expanding access to therapies and potentially finding a cure for Dravet syndrome.

Government Affairs

https://www.legis.state.pa.us/cfdocs/billinfo/bill_history.cfm?syear=2025&sind=0&body=S&type=R&bn=127