Bill > HB4730

This bill amends the Michigan Public Health Code to add Krabbe disease to the list of disorders and diseases that must be screened for in newborn infants. Currently, healthcare professionals are required to test newborns for several genetic and metabolic conditions such as phenylketonuria, galactosemia, and sickle cell anemia. By adding Krabbe disease to this list, the bill ensures that newborns will be tested for this rare and serious genetic disorder that affects the nervous system. The bill maintains the existing provisions that testing must be done within specific timeframes prescribed by the state department, and that positive test results must be reported to the infant's parents or guardians. The legislation will take effect 90 days after being enacted into law, giving healthcare providers time to implement the new screening requirement. This addition to newborn screening can help identify the disease early, potentially allowing for more timely medical intervention and management.

Health and Social Services

https://legislature.mi.gov/Bills/Bill?ObjectName=2025-HB-4730