Bill > HR302

This resolution addresses sickle cell disease (SCD), a severe inherited blood disorder primarily affecting people of color, particularly African Americans. The resolution recognizes that SCD is a condition where red blood cells are abnormally shaped, typically first appearing in children around six months of age, and can cause symptoms like anemia, pain, infections, and vision problems. Noting that an estimated 100,000 Americans are affected, with approximately 1 in 365 Black births impacted, the resolution aims to improve healthcare access and understanding of the disease. It calls on the Department of Health to conduct comprehensive data collection to quantify the scope and impact of SCD across patients, communities, and states. Additionally, the resolution urges federal policymakers to ensure individuals with SCD have access to all medications and treatments, including services for Medicare and Medicaid enrollees, and to support the development of new and effective treatments. The resolution highlights existing barriers to care, such as limited geographic access, financial constraints, and social stigma, while also recognizing that recent medical advances have improved life expectancy and quality of life for those with the disease.

Health and Social Services

https://www.legis.state.pa.us/cfdocs/billinfo/bill_history.cfm?syear=2025&sind=0&body=H&type=R&bn=302