Bill > HR316

This resolution recognizes the week of September 21 through 28, 2025, as "Frontotemporal Degeneration Awareness Week" in Pennsylvania, highlighting the significant impact of Frontotemporal Degeneration (FTD), a serious neurodegenerative disease that affects the frontal and temporal lobes of the brain. The resolution provides context about FTD, noting that it is a terminal and incurable condition that can strike people as young as 17 and as old as 87, with the majority of those affected being between 40 and 60 years old. It emphasizes that FTD represents 5% to 15% of all dementia cases and is the most common form of dementia for people under 60, often being misdiagnosed due to its complex symptoms. The resolution also points out the disease's significant challenges, including an average diagnosis time of 3.6 years, life expectancy of 7 to 13 years after symptom onset, and annual care costs approximately double those of Alzheimer's disease. By designating this awareness week, the resolution aims to increase public understanding of FTD, its symptoms, and the urgent need for more research and support for those affected by this devastating condition.

Health and Social Services

https://www.legis.state.pa.us/cfdocs/billinfo/bill_history.cfm?syear=2025&sind=0&body=H&type=R&bn=316