Bill > HR5355

This bill, named the "Ian Kalvinskas Pediatric Liver Cancer Early Detection and Screening Act," aims to improve early detection and treatment of pediatric liver diseases by directing the Secretary of Health and Human Services to conduct several key activities. The bill is motivated by the story of Ian Kalvinskas, a teenager who underwent a liver transplant, and recognizes the rising incidence of pediatric liver tumors and the critical importance of early detection. It mandates the Government Accountability Office (GAO) to conduct a comprehensive study on federally funded initiatives for improving early detection of pediatric liver tumors, examining research, education programs, and transplant wait-list mortality trends. Additionally, the bill requires the development of a public education program to raise awareness about early signs of pediatric liver disease and living liver donation, which will be implemented through the Health Resources and Services Administration in consultation with the Centers for Disease Control and Prevention. The program will create and distribute plain-language materials about liver diseases and living organ donation, potentially coordinating with existing cancer control and public health initiatives. Notably, the bill emphasizes that no additional funding will be authorized for these efforts, suggesting the program will be implemented using existing resources. The ultimate goal is to improve early detection, treatment, and survival rates for children with liver diseases.

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https://www.congress.gov/bill/119th-congress/house-bill/5355/all-info