Bill > HR5536

This bill establishes the "Headache Education, Access, Diagnosis, and Care Health Equity Act" (HEADACHE Act), which directs the Secretary of Health and Human Services to launch a comprehensive National Headache Disorders Initiative (NHDI) to address the medical, societal, and economic impacts of headache disorders. The bill defines headache disorders broadly, including conditions like migraines, cluster headaches, and post-traumatic headaches, and creates a diverse Advisory Council comprised of federal agency representatives and non-federal experts to guide research and care strategies. The NHDI will focus on increasing the clinical and research workforce, coordinating with other federal initiatives, prioritizing research to improve diagnosis and treatment, enhancing epidemiological data collection, reducing stigma, and addressing healthcare disparities. The initiative requires federal agencies to share standardized data about headache disorders and mandates an annual report to Congress evaluating research efforts, program performance, and recommending priority actions to improve patient outcomes. The Advisory Council will meet quarterly and host an annual research meeting, and the entire initiative will sunset after five years, requiring Congress to potentially renew or modify the program.

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https://www.congress.gov/bill/119th-congress/house-bill/5536/all-info