Bill > SRes447

This resolution designates September 25, 2025, as "National Ataxia Awareness Day" and aims to raise awareness about ataxia, a group of rare neurological disorders that affect brain coordination and movement. The resolution provides context about ataxia, explaining that it is a condition impacting individuals of all ages, including children, and encompasses several genetic neurodegenerative diseases such as Friedreich's ataxia and spinocerebellar ataxia. It highlights that ataxia can be caused by both genetic and non-genetic factors like stroke, head trauma, and multiple sclerosis, and can lead to various challenging symptoms including lack of coordination, slurred speech, difficulty walking, and potential mobility limitations requiring assistive devices. The resolution recognizes that inherited ataxias affect fewer than 200,000 individuals in the United States, are considered rare diseases, and currently have few treatments and no known cure. By designating this awareness day, the resolution seeks to improve public and medical professional understanding of ataxia, support patients and their families, encourage research into treatment options, and ultimately accelerate efforts to find a cure for this complex neurological condition.

https://www.congress.gov/bill/119th-congress/senate-resolution/447/all-info