Bill > SR0083

This resolution recognizes October 23, 2025, as PURA Syndrome Awareness Day to highlight a rare neurodevelopmental disorder caused by genetic alterations in the Purine-Rich Element Binding Protein A gene. PURA syndrome, first identified in medical literature in 2014, affects fewer than 1,000 diagnosed individuals worldwide and is characterized by significant developmental challenges, including developmental delays, intellectual disabilities, hypotonia, feeding difficulties, and seizures. The resolution acknowledges the extraordinary resilience of families affected by this condition and aims to raise awareness to promote early diagnosis, advance research, and foster supportive communities for individuals with this rare disease. By designating this specific day, the resolution encourages citizens to learn more about PURA syndrome, support affected families, and increase public understanding of rare genetic disorders, ultimately working to improve the quality of life for those impacted by this condition.

https://legislature.mi.gov/Bills/Bill?ObjectName=2025-SR-0083