summary
Introduced
11/19/2025
11/19/2025
In Committee
02/12/2026
02/12/2026
Crossed Over
Passed
Dead
Introduced Session
2026 Regular Session
Bill Summary
An act relating to the neurofibromatosis research grants; creating s. 381.994, F.S.; creating the Neurofibromatosis Disease Grant Program within the Department of Health; providing purpose of the program; requiring, subject to appropriation, the program to award certain grants; providing requirements for grant applications; requiring the Rare Disease Advisory Council and the peer review panels to establish and follow specified guidelines; prohibiting members of the council and panels from participating in certain discussions and decisions under certain circumstances; authorizing certain appropriation funds to be carried forward under certain circumstances; providing an effective date.
AI Summary
This bill establishes the Neurofibromatosis Disease Grant Program within Florida's Department of Health, aiming to advance research and find cures for neurofibromatosis, a group of genetic disorders. Subject to legislative funding, the program will award grants for scientific and clinical research to universities and research institutes across the state, with applications evaluated based on scientific merit through a competitive, peer-reviewed process. The Rare Disease Advisory Council and appointed peer review panels will set guidelines for ethical conduct and conflict of interest policies, preventing members from participating in decisions related to entities they are affiliated with. Additionally, any unspent funds appropriated for the program that are obligated or committed by the end of the fiscal year can be carried forward for up to five years, and the act will take effect on July 1, 2026.
Committee Categories
Health and Social Services
Sponsors (1)
Other Sponsors (1)
Health Professions & Programs Subcommittee (House)
Last Action
Now in Health & Human Services Committee (on 02/12/2026)
Official Document
bill text
bill summary
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bill summary
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bill summary
| Document Type | Source Location |
|---|---|
| State Bill Page | https://www.flsenate.gov/Session/Bill/2026/497 |
| BillText | https://www.flsenate.gov/Session/Bill/2026/497/BillText/c1/PDF |
| Analysis - Health Professions & Programs Subcommittee (Post-Meeting) | https://www.flsenate.gov/Session/Bill/2026/497/Analyses/h0497a.HPP.PDF |
| https://www.flsenate.gov/Session/Bill/2026/497/Amendment/521749/PDF | |
| Analysis - Health Professions & Programs Subcommittee (Post-Meeting) | https://www.flsenate.gov/Session/Bill/2026/497/Analyses/h0497.HPP.PDF |
| BillText | https://www.flsenate.gov/Session/Bill/2026/497/BillText/Filed/PDF |
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