Bill > HB2750

This bill modifies provisions related to testing performed by the Department of Health and Senior Services laboratories, primarily concerning newborn screening. Key changes include reducing the retention period for biological specimens from five years to one year, after which they must be destroyed, and mandating the destruction of newborn screening test results after one year. The bill also introduces a requirement for voluntary and informed written consent from a parent or guardian before an infant can be tested, specifying that this consent must be given before birth but not during active labor. Furthermore, it clarifies that the department may charge a reasonable fee for newborn screening tests, which is to be deposited in a dedicated fund for the newborn screening program and related activities, and ensures no individual will be denied screening due to inability to pay. The bill also updates the list of potentially treatable or manageable disorders that the department must expand newborn screening tests to include, such as cystic fibrosis, severe combined immunodeficiency (SCID), spinal muscular atrophy (SMA), Hunter syndrome, and various lysosomal storage diseases.

Health and Social Services

https://house.mo.gov/Bill.aspx?bill=HB2750&year=2026&code=R