Bill > HB2740

This bill establishes a Pediatric Disease Task Force within the department of higher education and workforce development to address genetic diseases, which are conditions caused by genetic variations, and pediatric diseases, which primarily affect individuals under eighteen years old, including rare pediatric diseases affecting fewer than 200,000 children in the U.S. The task force will be comprised of representatives from the department of higher education and workforce development, the department of health and senior services, four legislative members appointed by the president pro tempore of the senate and the speaker of the house, and eight members appointed by the governor with expertise in public universities, private healthcare research, private research, nonprofit partnerships, and patient advocacy. This task force is mandated to meet at least quarterly starting January 1, 2027, and will submit an annual report to the governor and general assembly detailing research initiatives in Missouri focused on these diseases, their outcomes, funding, and any legislative recommendations, with the task force set to expire on December 31, 2030.