Bill
Bill > HB999
MS HB999
MS HB999Parkinson's Disease Research Registry; establish within State Department of Health.
summary
Introduced
01/16/2026
01/16/2026
In Committee
02/13/2026
02/13/2026
Crossed Over
02/05/2026
02/05/2026
Passed
Dead
Introduced Session
2026 Regular Session
Bill Summary
An Act To Establish The Mississippi Parkinson's Disease Research Registry Within The State Department Of Health Under The Direction Of The State Health Officer; To Provide That The State Health Officer Shall Establish And Appoint The Members Of The Mississippi Parkinson's Disease Research Registry Advisory Committee To Assist In The Development And Implementation Of The Registry, Determine What Data Will Be Collected, And Advise The Department; To Direct The State Board Of Health To Promulgate Rules, In Consultation With The Advisory Committee, To Designate Parkinson's Disease And Identified Parkinsonisms As Diseases That Are Required To Be Reported To The Department; To Require The Department To Receive And Collect Data For The Registry On The Incidence And Prevalence Of Parkinson's Disease And Parkinsonisms In Mississippi And Related Epidemiological Data; To Require, Beginning January 1, 2027, Each Movement Disorder Center That Treats A Patient With Parkinson's Disease And Each Movement Disorder Health Care Provider Who Treats Or Diagnoses Parkinson's Disease Or Parkinsonisms For A Patient To Submit A Parkinson's Disease Report To The Department; To Provide That A Patient Who Does Not Wish To Participate In The Collection Of Data For The Purposes Of Research In The Registry May Opt Out After An Opportunity To Review The Documents And Ask Questions; To Authorize The Department To Make Data From The Registry, With Or Without Identifiers, Available To Researchers That Have The Approval Of An Institutional Review Board In Accordance With Requirements Of Federal Regulations; To Provide That All Information Collected Pursuant To This Act Is Confidential; To Require The Department To Maintain An Accurate Record Of All Persons Who Are Given Access To Information Collected By The Department Pursuant To This Act; To Require The Department To Provide Notice Of The Mandatory Reporting Required Under This Act On Its Website And To Professional Associations Representing Movement Disorder Centers And Movement Disorder Health Care Providers; To Require The Department To Submit To The Chairmen Of The House And Senate Public Health Committees A Yearly Program Summary Update; To Require The Department, By October 1, 2028, To Create, And Update Annually Thereafter, The Mississippi Parkinson's Disease Research Registry Website Where The Public Can Find Information Related To Parkinson's Disease And The Registry, The Yearly Program Summary Update, And Any Other Information Deemed Relevant By The Advisory Committee; And For Related Purposes.
AI Summary
This bill establishes the Mississippi Parkinson's Disease Research Registry within the State Department of Health, overseen by the State Health Officer, to collect data on Parkinson's disease and related conditions, referred to as Parkinsonisms, which include other movement disorders like multiple system atrophy and dementia with Lewy bodies. A newly formed Advisory Committee, composed of various medical professionals, researchers, and a patient representative, will guide the registry's development, data collection, and implementation. The State Board of Health, in consultation with this committee, will create rules requiring movement disorder centers and healthcare providers to report diagnoses of Parkinson's disease and Parkinsonisms starting January 1, 2027, though patients will have the option to opt out of data collection for research purposes. The Department of Health will then collect and analyze this data, making it available to approved researchers while ensuring all collected information remains confidential and protected from public disclosure or legal proceedings. The bill also mandates the creation of a public website by October 1, 2028, to share information about Parkinson's disease and the registry, and requires annual reports to legislative committees detailing the registry's findings.
Committee Categories
Health and Social Services
Sponsors (16)
Shane Aguirre (R)*,
Andy Boyd (R)*,
Elliot Burch (R)*,
Billy Adam Calvert (R)*,
Samuel Creekmore IV (R)*,
Becky Currie (R)*,
Kevin Felsher (R)*,
Jill Ford (R)*,
Josh Hawkins (R)*,
Robert Johnson (D)*,
Timmy Ladner (R)*,
Clay Mansell (R)*,
Dana McLean (R)*,
Troy Smith (R)*,
Jody Steverson (R)*,
Lance Varner (R)*,
Last Action
Referred To Public Health and Welfare (on 02/13/2026)
Official Document
bill text
bill summary
Loading...
bill summary
Loading...
bill summary
| Document Type | Source Location |
|---|---|
| State Bill Page | https://billstatus.ls.state.ms.us/2026/pdf/history/HB/HB0999.xml |
| BillText | https://billstatus.ls.state.ms.us/documents/2026/html/HB/0900-0999/HB0999PS.htm |
| BillText | https://billstatus.ls.state.ms.us/documents/2026/html/HB/0900-0999/HB0999IN.htm |
Loading...