Bill > HB1572

This bill establishes a Rare Disease Task Force within the Mississippi Rare Disease Advisory Council, a group dedicated to addressing the challenges faced by individuals with rare diseases, which are conditions affecting a small percentage of the population. The task force's primary purpose is to identify shortcomings in care, examine how insurance and other funding programs cover treatments, and advise lawmakers on effective solutions to ensure that people in Mississippi can access therapies for rare diseases fairly and without delay. The task force will be composed of seven members with diverse expertise, including medical professionals, researchers, patients, caregivers, and insurance experts, and will be responsible for reviewing "alternative funding programs," which are arrangements that use manufacturer assistance or charitable donations instead of direct insurance coverage for therapies. This task force will also investigate complaints about these funding practices and will submit an annual report to state officials detailing its findings and recommendations for improving access to rare disease treatments.

Health and Social Services

https://billstatus.ls.state.ms.us/2026/pdf/history/HB/HB1572.xml