Bill

Bill > A3766


NJ A3766

NJ A3766
Requires DOH to provide information regarding spina bifida to certain parents and families of newborns; "Levi's Law."


summary

Introduced
01/13/2026
In Committee
01/13/2026
Crossed Over
Passed
Dead

Introduced Session

2026-2027 Regular Session

Bill Summary

Current law requires DOH to make information on Down syndrome available on its website to any person who renders prenatal care, postnatal care, or genetic counseling of parents who receive a prenatal or postnatal diagnosis of Down syndrome. This bill, which would be known as "Levi's Law," amends P.L.2015, c.173 (C.26:2-194 et seq.) to expand the information that DOH is required to make available on its website to include spina bifida, and to make the information available to any person who renders prenatal care, postnatal care, or genetic counseling of parents who receive a prenatal or postnatal diagnosis of spina bifida. Under current law, DOH: may make information on Down syndrome available to any other person who has received a positive test result for Down syndrome; is authorized to revise the information as new information on Down Syndrome becomes available; and is required to provide the information in English and Spanish, and in a manner that is easily understandable for a woman or the family of a child receiving a postnatal diagnosis of Down syndrome. Under the provisions of the bill, DOH would be: allowed to make information on spina bifida to any other person who has received a positive test result from a spina bifida blood test; authorized to revise this information as new information about spina bifida becomes available; and required to provide the information in English and Spanish, and in a manner that is easily understandable for a woman or the family of a child receiving a postnatal diagnosis of spina bifida.

AI Summary

This bill, known as "Levi's Law," requires the Department of Health (DOH) to expand the information it provides on its website to include details about spina bifida, in addition to Down syndrome. This information, which must be evidence-based and reviewed by medical experts and relevant organizations like the Centers for Disease Control and the Spina Bifida Resource Network, will cover physical, developmental, educational, and psychosocial outcomes, life expectancy, treatment options, and support services. The DOH will also be permitted to share this information with individuals who receive a positive spina bifida blood test result and must provide it in English and Spanish in an easily understandable format for parents receiving a prenatal or postnatal diagnosis. Furthermore, healthcare providers, including physicians, nurse midwives, and genetic counselors, will be required to give this spina bifida information to expectant or new parents upon receiving a positive test result.

Committee Categories

Health and Social Services

Sponsors (2)

Last Action

Introduced, Referred to Assembly Health Committee (on 01/13/2026)

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