Bill > SB3049

This bill, titled "NEWBORN METABOLIC SCREENING," primarily aims to rename and expand the responsibilities of an advisory committee that guides the state's newborn screening program. The committee, formerly known as the Genetic and Metabolic Diseases Advisory Committee, will now be called the Universal Newborn Screening Advisory Committee. This change reflects a broader scope for the committee's work. Key new duties for the committee include holding quarterly meetings, actively reviewing various conditions for inclusion in newborn screening, making recommendations to the Department of Public Health on which conditions should be screened, and preparing annual reports for the General Assembly and the Governor's office detailing their reviews, recommendations, and the implementation status of new screenings. The bill also makes conforming changes to the short titles of related acts, ensuring consistency in terminology. These changes are intended to enhance the effectiveness and transparency of the state's efforts to screen newborns for potentially serious genetic and metabolic disorders.

https://www.ilga.gov/Legislation/BillStatus?DocNum=3049&GAID=18&DocTypeID=SB&SessionID=114&GA=104