Bill > H7406

This resolution, a formal expression from the Rhode Island House of Representatives, designates July of 2025 as "Fragile X Awareness Month" within the state. Fragile X Syndrome (FXS) is a genetic disorder that can lead to intellectual disability, behavioral issues, and physical abnormalities, and it is the most common inherited cause of intellectual disability and a frequent genetic cause of autism spectrum disorders. The resolution highlights that while FXS is identifiable through DNA testing, it often goes undiagnosed due to a lack of awareness, even among medical professionals. It also notes the potential of Fragile X research to benefit individuals with Alzheimer's and other brain disorders. Therefore, this month is intended to celebrate those affected by Fragile X, raise public awareness, promote research for effective treatments and a cure, and encourage support for families. The resolution also directs the Secretary of State to send certified copies to the National Fragile X Foundation (NFXF) and Little Rhody Warriors, organizations dedicated to supporting individuals with Fragile X.

https://status.rilegislature.gov/