Bill > SB2994

This bill amends the Genetic Information Privacy Act to include protections for "neurotechnology data," which refers to information captured by devices that measure or interpret the activity of an individual's nervous system, such as brain activity. The bill prohibits insurers from using this neurotechnology data, or genetic testing data, for non-therapeutic purposes or for underwriting, with limited exceptions for data that is voluntarily submitted and favorable to the individual. It also prevents employers, employment agencies, labor organizations, and licensing agencies from requesting, requiring, or using neurotechnology data in employment decisions, again with specific exceptions. Furthermore, the bill establishes new requirements for entities that collect neurotechnology data, mandating clear privacy policies, explicit consent for data collection and use, robust security measures, and regulated disclosure to government agencies, while also setting conditions for its use in clinical research. The legislation aims to safeguard the privacy and confidentiality of this highly sensitive personal information, with most provisions taking effect on January 1, 2027.

Government Affairs

https://www.ilga.gov/Legislation/BillStatus?DocNum=2994&GAID=18&DocTypeID=SB&SessionID=114&GA=104