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Bill > HB5295

IL HB5295

IL HB5295
REPRODUCTIVE HEALTH PRIVACY

summary

Introduced
02/05/2026
In Committee
05/20/2026
Crossed Over
04/16/2026
Passed
05/31/2026
Dead

Introduced Session

104th General Assembly

Bill Summary

Reinserts the provisions of the engrossed bill with the following changes. Makes changes to definitions of the terms "abortion-related health care services", "electronic health network", and "patient". Adds definitions of the terms "coded private health care information", "covered entity", and "private health care information". Deletes the definition of "protected health information". Provides that an electronic health network shall prevent the disclosure of a patient's coded private health care information (rather than specified electronic medical information) to a provider, business entity, other electronic health network, or health information exchange located outside this State unless the disclosure is for certain enumerated purposes. Makes changes concerning the prerequisites for disclosure to a covered entity. Makes changes concerning the technological capabilities an electronic health network must develop. Provides that, if the Department of Public Health adopts rules regarding the definition of private health care information, the Department shall consider any necessary exceptions to segregation in the rules it adopts. Specifies that the Act shall not be construed to require health care providers to use electronic health networks. Makes changes in a provision concerning patient directions to share medical information. Makes other changes. Effective July 1, 2027.

AI Summary

This bill, effective July 1, 2027, aims to enhance the privacy of certain health information, particularly concerning reproductive health, by redefining terms like "abortion-related health care services" and introducing new definitions for "coded private health care information," "covered entity," and "private health care information," while removing the term "protected health information." A key provision requires electronic health networks, which are entities facilitating health information exchange but not direct healthcare providers, to prevent the disclosure of a patient's "coded private health care information"—which includes specific medical codes related to abortions, complications, or gender dysphoria—to entities outside of Illinois, unless for specific approved reasons like technical support, quality assurance, payment, or with patient consent. The bill also mandates that these networks develop technological capabilities to segregate or prevent the sharing of this sensitive information, allow patients to direct its sharing, and to opt out of segregation, while prohibiting notification to out-of-state entities if such information has been segregated. Importantly, the bill clarifies that it does not compel healthcare providers to use electronic health networks and allows individuals to sue electronic health networks for violations, but not healthcare providers.

Committee Categories

Government Affairs, Health and Social Services

Sponsors (18)

Last Action

Sent to the Governor (on 06/10/2026)

Bill Topics

Civil Rights, Minority Issues, and Civil Liberties
  • ‐ Gender, Identity and Sexual Orientation Discrimination
  • ‐ Right to Privacy and Access to Government Information

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