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Bill > ACR132


CA ACR132

CA ACR132
Rare Disease Day.


summary

Introduced
02/10/2026
In Committee
02/24/2026
Crossed Over
02/23/2026
Passed
03/19/2026
Dead
Signed/Enacted/Adopted
03/19/2026

Introduced Session

2025-2026 Regular Session

Bill Summary

This measure would designate February 28, 2026, as Rare Disease Day and, with respect to rare diseases and disorders, would recognize the importance of improving awareness, encouraging accurate and early diagnosis, and supporting national and global efforts to develop effective treatments, diagnostics, and cures.

AI Summary

This concurrent resolution designates February 28, 2026, as Rare Disease Day, acknowledging that a rare disease or disorder affects a small number of people, specifically fewer than 200,000 individuals in the United States, and that millions of Americans live with one of over 10,000 known rare conditions, many of which are serious and life-threatening. The resolution highlights the ongoing efforts to combat these diseases, including the federal Orphan Drug Act, the FDA's Accelerating Rare disease Cures Program, and California's own Rare Disease Advisory Council, while also noting that a significant majority of rare diseases still lack an approved treatment. Ultimately, this resolution aims to improve awareness, encourage earlier and more accurate diagnoses, and support both national and international initiatives to find effective treatments, diagnostics, and cures for rare diseases and disorders.

Sponsors (75)

Diane Dixon (R)* Rick Zbur (D)* Dawn Addis (D),  Cecilia Aguiar-Curry (D),  Patrick Ahrens (D),  Juan Alanis (R),  David Alvarez (D),  Joaquin Arambula (D),  Anamarie Avila Farias (D),  Jasmeet Bains (D),  Rebecca Bauer-Kahan (D),  Steve Bennett (D),  Marc Berman (D),  Catherine Blakespear (D),  Tasha Boerner Horvath (D),  Mia Bonta (D),  Lisa Calderon (D),  Jessica Caloza (D),  Juan Carrillo (D),  Leticia Castillo (R),  Damon Connolly (D),  Laurie Davies (R),  Carl DeMaio (R),  Sade Elhawary (D),  Stan Ellis (R),  Heath Flora (R),  Mike Fong (D),  Jesse Gabriel (D),  Robert Garcia (D),  Mike Gipson (D),  Jeff Gonzalez (R),  Mark González (D),  Heather Hadwick (R),  Matt Haney (D),  John Harabedian (D),  Gregg Hart (D),  Josh Hoover (R),  Jacqui Irwin (D),  Corey Jackson (D),  Natasha Johnson (R),  Ash Kalra (D),  Maggy Krell (D),  Tom Lackey (R),  Alex Lee (D),  Josh Lowenthal (D),  Alexandra Macedo (R),  Tina McKinnor (D),  Stephanie Nguyen (D),  Roger Niello (R),  Liz Ortega (D),  Blanca Pacheco (D),  Diane Papan (D),  Darshana Patel (D),  Joe Patterson (R),  Gail Pellerin (D),  Cottie Petrie-Norris (D),  Sharon Quirk-Silva (D),  James Ramos (D),  Rhodesia Ransom (D),  Robert Rivas (D),  Michelle Rodriguez (D),  Chris Rogers (D),  Blanca Rubio (D),  Nick Schultz (D),  LaShae Sharp-Collins (D),  Jose Solache (D),  Esmeralda Soria (D),  Catherine Stefani (D),  Tri Ta (R),  David Tangipa (R),  Avelino Valencia (D),  Greg Wallis (R),  Chris Ward (D),  Buffy Wicks (D),  Lori Wilson (D), 

Last Action

Chaptered by Secretary of State - Res. Chapter 18, Statutes of 2026. (on 03/19/2026)

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